I realized I hadn’t posted an update or the results of Madalyn’s sleep study. After her awful experience at the study, things got back to “normal” pretty quickly once we got back home. (Insert “crazy busy life” in place of normal). Ha!
After we left the hospital, we went and picked up Samuel from Jordan’s place, took a couple pics and headed home.
Madalyn and Jordan are almost exactly 19 years apart. It always amazes me that I was giving birth to my daughter almost 19 years to the day after I gave birth to Jordan. Not exciting to all of you I'm sure, but I think its cool. Poor Madalyn was so tired after her sleepless night in Denver and driving 7 hours back home that morning, that she slept in til nearly 10 AM the next day. And this is the girl who wakes up religiously at 6:30 every morning. Poor little ladybug. There have been some slight changes around here because of the results of the swallow and sleep studies.
Because Madalyn is aspirating, all of her liquids have to be thickened now. It is a bit inconvenient and I’ll admit sometimes she has her milk without anything to thicken it, but for the most part we are getting used to doing it. Hopefully she will outgrow this soon.
During the sleep study, apparently Madalyn’s O2 sats were going pretty low and they had to give her oxygen. She had several episodes of apnea. She wasn’t breathing out the way they wanted and there was some concern about her exchange of oxygen and carbon dioxide.
Her total sleep time recorded was 117 minutes!! (See I told you it was an awful night!!)
From that short amount of time, they decided she needs to be back on oxygen at night (which we are doing), needs her tonsils and adenoids out, and even recommended that she see a pulmonologist (I refuse to freak out about this one). I believe her lungs are working fine.
If anyone has been through this (and/or the swallow issues), I would love to hear your thoughts!
I think that Madalyn’s night was so NOT typical of her normal sleeping, and that she was seriously stressed just from the environment and having all those wires attached to her body. (It made me claustrophobic just looking at her!)
I am not saying that their results are wrong. We are following through with their recommendations. Like I said, she is back on O2 at night. And we will call to schedule the tonsil surgery even though I do not want to see her have to go through another surgery... But does the stress of the whole experience play a part in the results of a study like this? I would love to hear opinions and experiences of you who have been there done that!
